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There are 30 million people with diabetes in the United States. ProPublica is spending the next year examining why care has become inaccessible for hundreds of thousands, if not millions, of people across the country with the condition. We want to learn more about the consequences of unaffordable treatment.
To do this reporting, we want to hear from as many diabetes patients and their relatives, researchers, medical professionals, lawmakers and pharmaceutical representatives as we can. We want to understand the obstacles to affordable care.
With Type 1 diabetes, we’re particularly interested in hearing the stories of people who have faced diabetic ketoacidosis, those who have gone into diabetic comas and those who have passed away. With Type 2 diabetes, we’re interested in hearing the stories of people who have suffered heart attacks and heart failure, strokes and other life-threatening complications.
We’ve seen remarkable innovation around diabetes care, but in the past decade, the progress we had made on patient outcomes has reversed course. The price of insulin has tripled, and even critical supplies like insulin pumps cost too much for many. Hospitalizations for acute complications are up. Lower limb amputations have increased by half. In extreme cases, people are dying from rationing insulin because they can’t afford the amount that they need.
We take your privacy seriously, and we’ll be the only ones reading what you send us through the questionnaire. You can also email us at diabetes@propublica.org or reach us through Signal and Securedrop.
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